Arc Of Illness
Though every illness is different, most follow a similar "arc" with a beginning, middle and end. Some illnesses last for days or weeks, others last years or even decades. The Arc of Illness is designed as an organizing strategy for information, tools, and resources to help caregivers and friends of caregivers.
The "middle" represents the period of an illness when the illness itself creates a "new normal" for the family. Focus points here are often on clarity of goals of care and ensuring continuity of care. The Middle Resources offer additional ways to organize friends and community to assist family caregivers as well as links to information from government and private organizations designed to help families navigate the illness journey.
The above resources for families and community members are offered as a starting point and will be revised and updated periodically. As with all medical and legal advice sites, it is appropriate to seek guidance from your doctor or lawyer as it pertains to your situation.
To suggest a resource or to comment on the usefulness of one of the listed resources, please email 4Cinfo@edc.org